Title

John Stein Professor of Disability Research

Education

B.A., University of Michigan, 1974

Ph.D., Brandeis University, 1981

Focus of Research

Disability Policy, Family Caregiving, Developmental Disability, Human Services.

Contact Information

krauss@brandeis.edu

Marty Wyngaarden Krauss

Marty Wyngaarden KraussMarty Wyngaarden Krauss is the John Stein Professor of Disability Research at the Heller School for Social Policy and Management, with an appointment in the Department of Sociology.

From 1993-1999, she served as the chairperson of the Massachusetts Governor's Commission on Mental Retardation. In 2000-2001, she was a member of the National Research Council's Committee on Disability Determination for Mental Retardation, which is an advisory board to the Social Security Administration.

Her research focuses on the social and familial impacts of developmental disabilities, particularly with respect to the adaptation of their families over the life span and the development of community-based programs. From 1988-1998, she was co-director of a ten-year study of families of adults with mental retardation, who lived at home with their aging parents. This field of research is now extended with a five-year grant to conduct the largest study ever conducted on the caregiving challenges experienced by families of adolescents and adults with autism. Krauss was also the co-director of a national study of health care for children with special health care needs.

Krauss teaches Survey Research Methods and Disability Policy Issues at the Heller School and Sociology of Disability (HSSP 192b).

In 2001, she received the Distinguished Research Award from the Arc-NS and in 2000, she received the Christian Pueschel Memorial Research Award from the National Down Syndrome Congress.

Recent Publications

"Navigating systems of care: Results from a national survey of families of children with special health care needs." with Wells, N., Gulley, S., & Anderson, B. Children's Services: Social Policy, Research, and Practice.

"Service utilization patterns of adults with intellectual disabilities: A Comparison of Puerto Rican and non-Latino white families." with Magaña, S., and Seltzer, M.M. Journal of Gerontological Social Work.

"Children with disabilities: A longitudinal study of child development and parent well-being." with Hauser-Cram, P., Warfield, J.E., and Shonkoff, J.P. (2001). Monographs of the Society for Research in Child Development, 66, (3, Serial No. 266).

"Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation." with Hong, J., and Seltzer, M.M. (2001). Family Relations, 50, 154-163.

"Family assessment within early intervention programs." (2000). In J.P. Shonkoff & S. Meisels (Eds.), Handbook of early childhood programs, 2nd Edition. New York: Cambridge University Press.

"Families of adolescents and adults with autism: Uncharted territory." with Seltzer, M.M., Orsmond, G.I., & Vestal, C. (2000). In L.M. Glidden (Ed.), International Review of Research on Mental Retardation. Vol. 23, San Diego: Academic Press.

"An unanticipated life: The impact of lifelong caregiving." with M.W. & Seltzer, M.M. (1999). In H. Bersani (Ed.), Responding to the challenge: International trends and current issues in developmental disabilities. Cambridge, MA: Brookline Books.

"Family influences on adaptive development in young children with Down syndrome." with Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., C.C., & Sayer, A. (1999). Child Development, 70, 979-989.

"The differential effects of social support on the psychological well-being of aging mothers of adults with mental illness or mental retardation." with Greenberg, J.S., Seltzer, M.M., & Kim, H. (1997). Family Relations, 46, 383-395.