Support Groups
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Autism
20 Eastbrook Road, Suite 201, Dedham, MA 02026-2056 | 781-302-4835 | autism.services@tillinc.org
Contact: Lisa Connor, Autism Service Coordinator
Servicing the greater Boston area, they provide individuals and families connections to clinical and support services.
Brain Injuries
Sally Johnson | Spaulding Rehab Hospital, 125 Nashua Street, Room 8A, Boston, MA 02114 | 617-952-6254
Usually meets on the first Saturday morning of the month at Spaulding Rehab Hospital, from 10:00-12:00. If the first Saturday falls on a holiday weekend, the BABIS Support Group will meet on the second Saturday. There are no meetings in July or October. Family and affected individuals are invited.
Karen Halfon | Spaulding Rehab Hospital, 125 Nashua Street, Rm. 8A, Boston, MA 02114 | 617-952-6560
A support group open to all ages focused on socialization and education for stroke survivors. Meets on the second Wednesday of the month from 3-4 p.m.
Down Syndrome
Roxanne Hoke-Chandler | 617-399-8343
Conference call information: 712-775-7031 | Access code: 850-505
21 Shades is an inclusive support group for all families of African heritage who love someone with Down Syndrome. Meetings will be held on the first Thursday of every month from 7-8 p.m.
Angela Lombardo | Children’s Hospital, 9 Hope Avenue, Waltham, MA 02452 | 857-218-4329
A supportive group to share personal experiences, make social connections, increase awareness and knowledge of issues. Meetings are held quarterly on Saturday mornings from 10 a.m. - 12 p.m. Refreshments, free parking, and childcare provided.
Jeff Roback | dadsmass@yahoo.com
An action group for fathers of children and youth with Down Syndrome; monthly meetings and activities provide opportunities for discussion and strategizing. Visit our website or email for details.
800-664-MDSC (6372) | mdsc@mdsc.org
MDSC helps parents and professionals to understand and cope with issues relating to Down syndrome. FIRST CALL program connects parents with veteran families.
151 Everett Avenue, Piso 4, Sala 401 (Eleanor Clark Conference room), Chelsea, MA 02150
The Down Syndrome Clinic of MGH-Boston and the Down Syndrome Congress collaborate at MGH / Chelsea Health Center Pediatrics to bring parents together every 2-3 months for education and support. This is a Spanish-language specific group.
La clínica de Síndrome de Down de MGH-Boston y el Congreso de síndrome de Down colaboran en MGH/Chelsea Salud Centro pediatría para reunir a los padres cada 2-3 meses para la educación y apoyo. Con frecuencia tenemos un orador con experiencia en trabajo con niños con síndrome de Down. Hemos tenido un especialista educativo, un OT, un PT, y terapeuta del habla. Disponemos de un intérprete que interpreta simultáneamente Inglés – Español o Español – Inglés.
El almuerzo es servido. Hay guardería para los niños menores de 3 años que no están en la escuela.
FECHA DE PRÓXIMA REUNIÓN: En septiembre en mediodía
MitoAction hosts weekly support groups for the mitochondrial disease community. Phone support groups include sessions specific to newly diagnosed patients; parents; and adult patients and spouses. MitoAction also offers quarterly Autism and Mito calls.
Liz Victor | 617-355-0635
Please refer parents of children with significant behavioral concerns (e.g. tantruming, acting out, forgetfulness, trouble following directions, staying on tasked). Meets weekly for 4 weeks.
Molly Markiewicz | 617-355-8565
Meeting to strengthen parent-child relationships. Improve child compliance at home and learn additional parenting skills.
Siblings
The MSSN is committed to supporting siblings of people with disabilities in the following ways: creating welcoming communities for siblings across the lifespan; improving the range and availability of sibling support services; and providing education about sibling-related issues.